Mission

The British Columbia Neurofibromatosis Foundation is committed to empowering and improving the lives of individuals and families affected by Neurofibromatosis. The BCNF provides information and support services, promotes awareness and funds research to improve treatment and find a cure.

Vision

Together… Improving the lives of those with NF

Together… Reaching for a cure

About the BCNF

paulsm.jpgThe BCNF was established in 1984 to respond to the needs of individuals with NF and their families. The organization exists today because of one individual – Paul Ralfs. Paul Ralfs’ determination and belief that individuals with NF need not go through their journey alone, drove him to found The BC Neurofibromatosis Foundation. The BCNF continues its work today through the efforts of a Board of Directors, part-time staff and volunteers.

The purpose of the organization is to:

  • Provide quality Neurofibromatosis (NF) information to individuals with NF and their families, health care and education professionals and others
  • Provide front-line and on-going support to newly diagnosed individuals, their families and the membership in general
  • Educate the public about NF to foster global awareness and understanding
  • Support research to improve treatment options and our dream, to find a cure.
  • Ensure that there are sufficient funds to carry out the organization’s mission through a broad based fund raising program
  • Develop lasting, mutually beneficial partnerships to further the cause of those living with NF

Guiding Principles:

  1. We are caring, compassionate and committed to individuals and families with NF
  2. We are accountable and responsible for achieving results and having an impact.
  3. We are accepting of and include all who need service
  4. We are hopeful and optimistic in our continual striving for excellence in pursuit of our vision.
  5. We are driven and directed by the needs and desires of our membership.

“Although the effects of Neurofibromatosis vary greatly from person to person, most people with NF live fulfilling and productive lives. We know more now than in the past about how to diagnose, prevent and treat many serious complications of NF. Certainly, there is still a great need to learn more, but if NF research labs and organizations such as BCNF continue to work together, our understanding of this complex disorder and our ability to treat it effectively will be much better tomorrow than it is today.”

Jan Friedman, MD, PhD, Professor of Medical Genetics, University of British Columbia